I wish it was all…
I was having a conversation with my son, Josh, today. It was fascinating!! Why? Because though Josh has limited verbal skills
he has a high level of comprehension and communication. Most people don’t see it at first but if you
spend one-on-one time with him his personality comes shining through!
During our conversation Joshua asked and though it would be
neat if the world could be completely wheelchair accessible. Wow, I was blown away by this. He made it clear that it would just be easier
if EVERYTHING was wheelchair accessible so he could go where he wants when he
wants! I held back the tears and said,
yeah Josh, that would be awesome and I wish we could make that happen too. He
verbalized a loud yeah and smiled. The
other thing that shocked me was the Joshua did not wish he could walk because
he said that he has walked many times in his dreams and being in a wheelchair
at times has its advantages.
The conversation then turned to labels. We discussed how he wished people did not
give the word “special” or “special needs”.
Though he likes the extra attention he gets sometimes he also asked that
all labels be dropped. Another wow
moment. I agreed, we all use labels as
descriptors for various scenarios.
Joshua stated very clearly that he wanted the label to describe him to
be dropped. He just wanted to be
accepted as Josh. Not Josh who is
special or Josh who uses a wheelchair.
In fact he wanted what we all want to be treated fairly and honestly
like everyone else. What an awesome
goal. This conversation was so
enlightening because he was so excited and started to verbalize answers to
questions so he is very passionate about becoming “unlabeled”.
What did I learn? Joshua keeps amazing me. His wanting to be accepted as a productive
member of society is growing and growing. He wants to shed his “label”. Josh expects you to treat him as Josh a 12
year old. He is NOT letting his limits define him.
So I ask you look at yourself, what labels are you putting
out there? Can you shed them? Can you
drop all labels and look at creating opportunities for ALL in your community so
that we can make the steps to make the world really accessible!!
Joshua is all in, all the time! Please join us to make it
happen.
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